International Leprosy Association -
History of Leprosy

  • International Leprosy Association -
    History of Leprosy

    Database

    Lake Bunyoni Leprosy Settlement (later Lake Bunyonyi Leprosy Settlement)

    Location

    Category Leprosarium
    Country Uganda

    Notes

    In 1921 Dr Leonard E S Sharp, his wife, and fellow medical missionaries Dr and Mrs Stanley Smith arrived in Kabezi, Uganda and set up the ‘Ruanda Mission’ hospital near Lake Bunyoni. The hospital's early intake soon included enough leprosy patients for a special ward to be set aside for them. After consulting medical and administrative departments of the Uganda government, the missionaries moved to set up a leprosy settlement on an island on Lake Bunyoni.

    The settlement was founded in 1930, with the aid of grants from the Uganda Protectorate and local native administrative funds, and 25 leprosy patients were transferred from the original hospital. From 1930 to 1948 a number of missionary workers were resident, including Miss Langley, Miss Horton, Miss Mash (from 1937), and Miss Marguerite Barley. Maintenance and staff costs were supported by funds from the ‘Friends of Ruanda’, Mission to Lepers and The British Empire Leprosy Relief Association.

    In his account published in 1951, Sharp reported:

    “The number of resident patients under treatment of recent years has exceeded eight hundred and new cases admitted annually have been approximately one hundred and thirty. Nearly 90 per cent of these are lepromotus cases, infective to others and urgently needing treatment. The percentages of all cases in the settlement are 43 men, 34 women and 23 children.” (pp. 68-9)

    He claimed that, over the first 18 years of leprosy work, the island had welcomed over 2000 persons with leprosy, and nearly 500 had returned home ‘restored’.

    Leonard ES Sharp and Janet Metcalf, Island of Miracles: the Story of Lake Bunyoni Leprosy Settlement, Uganda, published by the Ruanda General and Medical Mission, CMS [church mission society], Croydon, England [1951].

    The following report is reprinted from the Leprosy Review (1965) 36, I: 47-8

    "Thirty-fourth Annual Report of Lake Bunyonyi Leprosarium 1963-64

    Annual reports on the work of long-established leprosaria may vary very little from year to year, although major effects of the work done may be clearly seen when they are assessed at longer intervals. One was reminded of this when thinking of, and comparing with, the making of maps. In depicting sea-bound coasts that suffer gradual erosion, cartographers can only show marked changes in the outline after a sufficient number of years have elapsed since the previous drawings were made. Looked at in this light it might well be claimed that, under the good hand of God, this Settlement during the 30 odd years of its working has been able to make a considerable ‘dent’ in the incidence of leprosy in Kigezi. Although the population of this District has almost doubled during that time (and conceivably the numbers of sufferers from leprosy were added to also), the estimated total of between 3,000 and 4,000 cases of leprosy has been reduced to 300 or 400 - literally a decimation - that is, of course, excluding our present patients in the leprosarium. Over 2,500 patients have been registered with us for longer or shorter periods of treatment. Many, unfortunately, have taken themselves off before they should have done so, for one reason or another, but this is not surprising in view of the usually lengthy stay that is necessary to effect ‘cures’ from this stubborn and often perplexing disease, which shows many variations though largely conforming to three or four major types. However, through the years there has been a steady output of ‘arrested’ or ‘cured’ cases (whichever term is favoured) either ‘with’ or ‘without’ deformity. We are glad that the latter greatly outnumber the former, and this is especially so since the introduction of the sulphone drugs. These are far more potent than anything in use previously, and are almost universally accepted as standard treatment, having revolutionized the whole outlook for the unfortunate sufferers from this disease.

    Looking at our own figures, great encouragement can be derived. In 1950 for example there were 850 active cases under treatment resident on the Island, with a total population of over 1,000, so that we were terribly, but unavoidably, overcrowded. Today there are about 200 requiring treatment, mostly in-patients, while about 50 others are retained, being crippled, blinded, or otherwise incapacitated and needing care or assistance of one sort or another. These for the most part came too late in the course of their infection to be saved from such calamitous consequences.

    With these comparisons in mind, and conclusions that may be drawn from them, we proceed to give the report for the 12 months ending 30th June, 1964.

    Numbers In-patients 176 on 1st July and 173 on 30th June.
    Out-patients, starting with 25, we ended with 35.
    Cured, but crippled and retained, 51.
    Cured, and retained as staff, 13.

    Discharged Cured and sent home, 30; another 29 cured but under observation.

    Admission of new cases Thirty-three, two being children under 14, now unusual.

    Deaths Six patients have died, three being ‘arrested’ cases, and three others.

    Path. lab. examinations 4,456.

    General OP. treatments for residents 6,371.

    Staff Our European Staff has been depleted by the loss of Sister Marguerite Barley, who had to leave for family reasons and may not be able to return. Some non-infected and better educated African Staff have joined us, and the standard of work has been improved. Some small rises in pay have been made possible, although the rate is admittedly too low.

    Housing It has been possible to make some improvements in staff housing, as well as that of patients. A completely new house with six good-sized rooms, plus kitchen, has been built for one of our senior workers with a large family, for the cost of about £750, drawn from the Asker Legacy which was previously deposited with the Mission in England for any such needs.

    Food and fuel supplies have been well maintained, and the supply of water by the windmill pumps has continued most of the year.

    Finances We are grateful to the Uganda Central Government for renewing their annual grant at the same figure, as also the Local Governments, although the latter gave us a temporary shock by omitting provision for the second half of 1963, when they changed their financial year from July to June, to January to December each year. However, after some representations, this has been either restored or at least promised. We are also grateful to the Mission to Lepers and the British Leprosy Relief Association* for their continued help, while Christian praying and working helpers in the home countries have contributed most generously.

    Out-patient department , where non-leprosy patients from the villages and kraals on the hills round the Lake are allowed to come daily, has had a busy year. Total attendances amounted to 10,872, to whom 4,555 injections were given, and 421 had teeth extractions.

    Whooping cough prophylaxis During three months in 5963 a mass campaign against whooping cough was carried out in our O.P.D. With vaccine supplied by the Government over 2,000 children of five years and under were brought for injection of three monthly doses. With very fair co-operation by the local chiefs, over 6o per cent of these attended the three times.

    CHURCH and social activities have been continued through the year, and we would express deep gratitude to GOD for all His many mercies.

    External links:

    S. Lyall,' Last Four Alive on Leper's Island'

    'Crime and Punishment'

    Papers of the Mid-Africa Ministry (from Mundus)

    Leprosaria - Historical References
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