International Leprosy Association -
History of Leprosy

  • International Leprosy Association -
    History of Leprosy


    Stanley Stein

    Status Advocate
    Country USA


    Stanley Stein was born Sidney Maurice Levyson in 1899 in the USA. He was a leprosy patient at Carville from 1931 until his death in 1967. On entering Carville he changed his name, not an uncommon practice for those diagnosed with leprosy the time. He established the newspaper The Star in 1941, four years after he became completely blind. This publication, which focused on issues related to leprosy and featured mainly articles written by patients, enabled him to accomplish much for people affected by leprosy. Digitised copies of The Star can be accessed here.

    Stein fearlessly fought for the acceptance by the community of a person with leprosy and for enlightened understanding of leprosy and its sufferers. He was the first recipient of the Damien-Dutton Award in 1953. He published an autobiography, Alone No Longer, in 1963.

    Adapted from International Journal of Leprosy, Centennial Festskrift edition, Vol 41, No 2, 1973.

    See also: J R Trautman, 'Stanley Stein, 1899-1967', Int J Lepr Other Mycobact Dis. 36.2 (1968): 234-5.

    Entry updated January 2016


    Alone No Longer: The Story of a Man who Refused to be One of the Living Dead!. By Stanley Stein with Lawrence G Blochman. Foreword by Perry Burgess. Carville, La.; The Star, 1974, c1963.


    Skinsnes Law, Anwei - Personal Collection  

    Correspondence with Stanley Stein is contained in the personal collection of Dr Olaf K Skinsnes, which forms part of Anwei Law's private collection. Material relevant to Stanley Stein is also contained within the Public Health Service Hospitals Historical Collection which is part of the United States National Library of Medicine.

    National Library of Medicine  

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